Battling Batten Disease 5K

November 03, 2019

Join us for the 2019 5K and Family Walk at Scioto Audubon Metro Park.  This fundraising event is organized by a group of volunteers in memory of Celia Betz and her brave fight against Batten disease.

Batten disease, or Neuronal Ceroid Lipofuscinosis (NCL), is a family of rare terminal diseases caused by autosomal recessive genetic mutations resulting in the body.  These genetic mutations disrupt the cells’ ability to dispose of wastes.  Cells are thrown out of  balance with the  build-up of proteins and lipids (fats). There are 13 known forms of Batten disease and yu will often hear them referred to as CLN1-CLN14.  It is estimated that 2-4 births per 100,000 in the U.S. are affected by Batten disease, though some researchers in the field suggest these numbers are low.  There is currently no cure.

The 5K course will include a loop through the Scioto Audubon Metro Park and an out and back section on the Scioto trail.

The information about this race is based on information provided by the organizers or found on the official website of the event. Always check the official website for up-to-date information. If you have noticed any mistake, let us know at [email protected]


5K Run/Walk

November 03, 2019 (Sunday) - 09:45
3.1 miles

1 Mile Walk

November 03, 2019 (Sunday) - 09:45
1 mile

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