Michael Covert Epidermolysis Bullosa 5K Run & 2K Walk

September 1, 2018
Registration and packet pick up starts at 6:30AM
5K Run and 2K walk starts at 8:00AM

Josie’s Restaurant
241 E. Park Ave
Columbiana, Ohio 44408

All proceed go to DEBRA, the only non-profit organization to help those who suffer from Epidermolysis Bullosa

Epidermolysis Bullosa (EB) — "The Worst Disease You've Never Heard Of."

Epidermolysis Bullosa, or EB, is a rare genetic connective tissue disorder that affects 1 out of every 20,000 births in the United States (approximately 200 children a year are born with EB). There is no treatment or cure. There are many genetic and symptomatic variations of EB, but all share the prominent symptom of extremely fragile skin that blisters and tears from minor friction or trauma. Internal organs and bodily systems can also be seriously affected by the disease. EB is always painful, often pervasive and debilitating, and is in some cases lethal before the age of 30. EB affects both genders and every racial and ethnic background equally. Daily wound care, pain management, and protective bandaging are the only options available for people with EB. – DEBRA.org

Entry Fees:

5k Run - $15 if received by August 15

$20 if received after August 15th and on race day

2K Walk - $10

We must receive registration by August 15 to receive a t-shirt.