We are thrilled to announce that we have just been given permission to have the Eye Love Logan and Zoe 5k this year in person!!! So keep wearing those masks so we can all be together and celebrate. :)
So, for those of you who want to come run with us please sign up and encourage others to join. You can still run virtually if you are not ready to break away from quarantine ( we get it).
Over the past year research has not been moving much at all. Unfortunately, we lost some progress from the labs shutting down in England but we have also had a chance to gather more supporters and families and keep pushing. The Foundation Fighting Blindness is thinking about funding our study, we are now funding a PhD student to do research that we will own ( in the past we have lost research we have funded because others have owned it and refuse to share), and we are also debating having a company who fights for rare disease to work for us- so now more than ever we need money to keep this ball rolling.
The quarantine has been a struggle having legally blind kids do on-line learning (It is fairly hard to learn braille online). We are happy to have them back in school but are more than ever motivated to find a cure. Seeing our kids struggle in school has been humbling and hard.
We still plan on putting out yard signs to anyone who signs up in the local Colorado area until we are out of them. We would love if you would put it in your yard and try to encourage others to join. For those of you who will be running on the 22nd of August with us virtually, we would love to see pictures of you crossing the finish line and/or posing with your sign, or even a neighborhood filled with signs on the eyeloveloganandzoe5k facebook page. The more education and spotlight we can put on this disease, the faster we will get across the finish line, if not for my kids, for others who still have time before their sight is gone.
If you don’t think you can run or walk the 5k, please consider donating by simply clicking on the donate button on the top of this page.
This is a rare disease that science will not fund a cure for as it is will not be profitable for them. This means, as parents, we are on our own to raise the money and fight for a cure. Thank you so much for your kindness!!!
RDH12 Families and Kids